Links
Medical Information
Neuromuscular Disease Portal Site
The National Center of Neurology and Psychiatry has launched a new website, the “Neuromuscular Disease Portal Site.” This portal site provides a wide range of information on neuromuscular diseases to patients, their families, medical professionals, pharmaceutical companies, and others.
Clinical Trial Information
Remudy, a registry for patients with neuromuscular diseases
REMUDY (Refractory Muscle Disease Registry) is a website operated by the National Center of Neurology and Psychiatry (NCNP) that provides research and databases primarily related to muscle diseases. Its purpose is to collect information on muscle diseases in a format that allows patients and their families to participate, with the aim of contributing to the development of treatments and research. Additionally, through patient registration and information sharing, REMUDY collaborates in recruiting participants for clinical trials of new treatments.
Genetic Counceling
National Hospital Organization Niigata Hospital Genetic Medicine Department
The National Hospital Organization Niigata Hospital has established a genetic medicine department to address concerns and questions regarding hereditary diseases. Patients and their families can receive genetic counseling from specialized clinical geneticists and genetic counselors, enabling them to obtain accurate information about genetics and make the best possible decisions.