About membership
FSHD Japan : Now accepting new members
FSHD Japan,the Facioscapulohumeral Muscular Dystrophy (FSHD) Patient Association is currently recruiting new members. Anyone who is a patient with Facioscapulohumeral Muscular Dystrophy (FSHD) or a family member of such a patient and supports the objectives of this association is welcome to join.
Benefits of joining FSHD Japan
1. We invite you to seminars and networking events for the purpose of exchange and learning.
2. You can join the members-only mailing list immediately after registration (a place for members to exchange information).
3. You can contribute to research on diseases and treatments.
4. You can consult with us about any concerns or questions you may have regarding your illness or daily life.
Confirmation
・Eligibility for membership in the FSHD Japan: Patients with facioscapulohumeral muscular dystrophy, their families, and supporters
* You can join the FSHD Japan even if you are not a member of the Japan Muscular Dystrophy Association.
・Membership fee: Free
*FSHD Japan is operated through grants and donations from the Japan Muscular Dystrophy Association and other sources.
• Other benefits of joining the Japan Muscular Dystrophy Association: We encourage you to join the association as well.
*In addition to participating in regional exchange meetings, you can access the association's member-only website, which includes medical research information, newsletters, online lectures, updates on drug development, and a muscle disease encyclopedia. (To join the association, please click here.)
1. Invitation to seminars and exchange meetings aimed at networking and learning
2. Immediate access to the member-only mailing list (a platform for exchanging information among members)
3. Opportunity to contribute to research on the disease and treatment options
4. Consultation on concerns or questions related to the disease or daily life
How to join
1. Please read the Rules and Regulations.
2. After confirming, please apply using the application form.
Contact: Facioscapulohumeral Muscular Dystrophy Patient Association (FSHD Japan)
If you have any questions, please feel free to contact us using the Contact Us page on this website.