About membership
FSHD Japan : Now accepting new members
FSHD Japan is currently accepting membership registrations.
Whether you are a patient with facioscapulohumeral muscular dystrophy (FSHD), a family member, a supporter, or anyone else who agrees with the purpose of this community, anyone is welcome to register.
FSHD Japan operates based on the following principles.
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We operate as a broad patient community (comprehensive framework).
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We continue patient-centered activities where patients, families, and stakeholders support one another.
Benefits of joining FSHD Japan
1. Invitations to Seminars and Social Gatherings
We will send you information about study sessions, social gatherings, webinars, and other events for patients and families.
2. Opportunities to Participate in Research
You can participate in initiatives that incorporate patient perspectives into research, such as treatment development and clinical studies.
Important Notes
■ Eligibility
・Patients with Facioscapulohumeral Muscular Dystrophy (FSHD)
・Family members
・Healthcare, research, and support professionals
・Supporters who agree with the purpose of our activities
*Anonymous community registration is also available.
■ Registration and Membership Fees
・Free
How to join
Please sign up via the Japanese page.
*FSHD Japan’s activities are also supported by the Japan Muscular Dystrophy Association.
The Japan Muscular Dystrophy Association provides a variety of information and opportunities for community interaction.
We encourage you to consider joining the association.
Important Notes
■ Eligibility
・Patients with Facioscapulohumeral Muscular Dystrophy (FSHD)
・Family members
・Healthcare, research, and support professionals
・Supporters who agree with the purpose of our activities
*Anonymous community registration is also available.
■ Registration and Membership Fees
・Free
Important Notes
■ Eligibility
・Patients with Facioscapulohumeral Muscular Dystrophy (FSHD)
・Family members
・Healthcare, research, and support professionals
・Supporters who agree with the purpose of our activities
*Anonymous community registration is also available.
■ Registration and Membership Fees
・Free