[Announcement] 8th FSHD Quality of Life (QOL) Forum

On Sunday, September 27, 2026, we will hold the 8th FSHD Quality of Life (QOL) Forum, “CARE and CURE: FSHD Care and the Latest Developments in Treatment.”

This will be a hybrid event, held in person in Umeda, Osaka, and online via Zoom.

Experts in FSHD will give presentations on medical care, genetics, and treatment, and those attending in person will also have an opportunity to meet and talk with experts and fellow members of the FSHD community.

【Event Details】

Date & Time: Sunday, September 27, 2026, 1:30–6:30 p.m.(Online program ends at 4:30 p.m.)

Venue: GRAND GREEN OSAKA, JAM BASE Conference 5-1

Format: In person / Online via Zoom (hybrid)

Participation Fee:In person: ¥1,000Online: Free

【Program】

1:30 p.m.　Opening

1:40 p.m.　“Creating Better FSHD Care Together”Dr. Tsuyoshi Matsumura(NHO Osaka Toneyama Medical Center)

2:00 p.m.　“FSHD and Genetics”Dr. Tomoki Kosho(Department of Medical Genetics, Shinshu University School of Medicine)

2:50 p.m.　Break

3:20 p.m.　Interactive Session: “Let’s Talk with an FSHD Expert from the Netherlands”Prof. Nicol Voermans(Radboud University Medical Center, the Netherlands)

4:20 p.m.　Announcements from FSHD JAPAN

4:30 p.m.　In-Person Patient交流 Session(The online program will end at this time.)

6:30 p.m.　Closing

We hope this event will provide an opportunity to learn more about FSHD medical care, genetics, and the latest developments in treatment research, and to think about these topics together with experts and fellow members of the FSHD community.

If you are unable to attend in person, we warmly invite you to join us online.

Registration is available through the FSHD JAPAN Membership page.

Registration deadline: Extended to Saturday, September 26

Payment: You may pay online in advance via Stripe or pay in cash at the venue on the day of the event.

※ If more than one person will be attending, please select the number of participants when making your online payment.

※ Donations above the participation fee are also greatly appreciated.

If you have not yet registered for FSHD JAPAN Membership, please complete your membership registration first.

▶ Membership Registrationhttps://www.fshd-jp.org/howtojoinus

▶ Venue Access Informationhttps://jambase-space.com/assets/pdf/download/conference_access.pdf

We look forward to welcoming you!

FSHD JAPAN

Contact: info@fshd-jp.org