FSHD Patient Meetup in Tokyo

A joint event by FSHD JAPAN and the “FSHD Open Chat.” We’ll be meeting face-to-face and interacting with everyone we usually connect with

on the other side of the screen.

Time: Sunday, May 3, 2026; Doors open at 12:30 PM, 1:00 PM – 4:50 PM

Location: AP Tokyo Marunouchi, Room F (Nippon Life Marunouchi Garden Tower, 3rd Floor)

Special Guest: Irene González Álvarez (FSHD Spain🇪🇸)

On-site Participation Fee: 1,000 yen

How to Register: Via the FSHD Japan Membership Kintone App

*If there are many applicants, registration may be on a first-come, first-served basis due to venue capacity. We appreciate your understanding.

*Please download the Membership Kintone App in advance. For details, see here.

Partial online participation available (details to follow)

Co-hosted by: FSHD Chat Group Volunteers & FSHD Japan

Important Notes:

Lunch will not be provided or available for purchase. Please have lunch before arriving.

There is one accessible restroom on the same floor (3F). There is also one each on the 2F and B1; please use the elevator to access them.

Parking (B2F) ~ Ground-level entrance (1F) ~ 3F. All areas are accessible via the same elevator.