[Announcement] RDD Online Patient Meeting

＼Everyone, Come Join Us for the Patient Exchange Event!🙌／

To commemorate Rare Disease Day this year, we’re hosting an online patient exchange event!

Saturday, February 28, 2026, 3:00 PM – 5:00 PM

Let’s all bring topics we’d like to discuss!✊

↓Here’s a look at the program↓

・Conversation starters (bring your own topics)

・Q&A session with researchers

・Patient networking time

Anyone affected by FSHD—including patients, family members, and supporters—is welcome to join.

If you’d like to participate, please register for FSHD JAPAN membership here.

Existing members will receive an email with details on how to pre-register.

We look forward to seeing you there!